Riding the Rollercoaster

From Twitter 11-11-2009

2009-11-12T02:01:00.001Z

18:58:33: Jillbrad: All signed up for the new trial, starting Tuesday. Woo Hoo

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2009-11-11T21:10:00.000Z

17:58 All signed up for the new trial, starting Tuesday. Woo Hoo #

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From Twitter 11-03-2009

2009-11-04T02:01:00.001Z

22:07:11: Jillbrad: Well it's official. I'm a mutant. Well I have a mutant K-ras so I can't do the trial we were hoping to do.
22:08:25: Jillbrad: Will see doc on Monday to see which other trial is available so fingers crossed.

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2009-11-03T21:10:00.001Z

21:07 Well it's official. I'm a mutant. Well I have a mutant K-ras so I can't do the trial we were hoping to do. #
21:08 Will see doc on Monday to see which other trial is available so fingers crossed. #

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From Twitter 11-01-2009

2009-11-02T02:01:00.001Z

00:19:46: Jillbrad: I had a wonderful birthday and thank you to all the lovely people who sent such kind wishes. It made my day!
00:23:52: Jillbrad: @SmilyLibrarian @NicolaMcNee @MichaelStead @AidanBaker Had a wonderful Birthday. Thank you all for your good wishes!
00:25:09: Jillbrad: @libram @Ali_Holder @vickya63 @karenblakeman I had a wonderful birthday and was indead spoiled rotten. Thank you all for your good wishes!
12:41:46: Jillbrad: @JuliefaithRigby Hi Julie, How kind of you, it would ne nice to see you anyway as it's been a long time. We should be around most of today.

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2009-11-01T21:10:00.001Z

23:19 I had a wonderful birthday and thank you to all the lovely people who sent such kind wishes. It made my day! #
23:23 @SmilyLibrarian @NicolaMcNee @MichaelStead @AidanBaker Had a wonderful Birthday. Thank you all for your good wishes! #
23:25 @libram @Ali_Holder @vickya63 @karenblakeman I had a wonderful birthday and was indead spoiled rotten. Thank you all for your good wishes! #
11:41 @JuliefaithRigby Hi Julie, How kind of you, it would ne nice to see you anyway as it's been a long time. We should be around most of today. #

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From Twitter 10-28-2009

2009-10-29T02:01:00.001Z

12:51:04: Jillbrad: Sorry about delay in posting but I've been in a lot of pain recently. Hospital yesterday and the new painkillers are great!
12:52:17: Jillbrad: Sort of downside at hosp was that last scan not good so I'll be moving to a new trial.
12:53:13: Jillbrad: The best trial available has one criteria they are still checking to see if I'm eligible so fingers crossed!
13:12:54: Jillbrad: @sammaddin Poor Sam, hope things a bit better soon.

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2009-10-28T21:10:00.001Z

11:51 Sorry about delay in posting but I've been in a lot of pain recently. Hospital yesterday and the new painkillers are great! #
11:52 Sort of downside at hosp was that last scan not good so I'll be moving to a new trial. #
11:53 The best trial available has one criteria they are still checking to see if I'm eligible so fingers crossed! #
12:12 @sammaddin Poor Sam, hope things a bit better soon. #

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From Twitter 10-21-2009

2009-10-22T03:03:00.001+01:00

16:15:43: Jillbrad: No chemo today, partly because my kidney function was a bit iffy (bloods fine after the injection last week). Partly cos I have scan Friday.

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2009-10-21T21:10:00.001+01:00

23:09 Better today after a couple of bad days (don't know why). Hosp tomorrow for chemo if my bloods are okay. #
16:15 No chemo today, partly because my kidney function was a bit iffy (bloods fine after the injection last week). Partly cos I have scan Friday. #

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From Twitter 10-20-2009

2009-10-21T03:03:00.001+01:00

23:09:03: Jillbrad: Better today after a couple of bad days (don't know why). Hosp tomorrow for chemo if my bloods are okay.

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From Twitter 10-16-2009

2009-10-17T03:01:00.001+01:00

10:43:50: Jillbrad: I'm off to have my hair done (cut and colour). While Phil goes to speak at a conference, Sounds like a fair division of labour to me! He He

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2009-10-16T21:10:00.001+01:00

10:43 I'm off to have my hair done (cut and colour). While Phil goes to speak at a conference, Sounds like a fair division of labour to me! He He #

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From Twitter 10-15-2009

2009-10-16T03:02:00.001+01:00

11:04:41: Jillbrad: Much better yesterday. Went with Phil while he did a short evening course in Surrey. Then out to a chinese dinner (yum yum* with friends.
12:24:27: Jillbrad: Some loverly lilies I got last week as buds. http://twitpic.com/llltq

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2009-10-15T21:10:00.001+01:00

11:04 Much better yesterday. Went with Phil while he did a short evening course in Surrey. Then out to a chinese dinner (yum yum* with friends. #
12:24 Some loverly lilies I got last week as buds. twitpic.com/llltq #

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From Twitter 10-13-2009

2009-10-14T03:02:00.001+01:00

13:54:33: Jillbrad: No chemo today, bloods low. Not sure if I'm sad or pleased cos this last cycle has been a pretty bad one and now I have a week to recover.

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From Twitter 09-30-2009

2009-10-01T03:02:00.001+01:00

11:55:01: Jillbrad: @vickya63 Yes we flew from Stapleford, down to the QE2 bridge then followed the river and across Essex. Was fab!
11:57:15: Jillbrad: @CareersInfo @SmilyLibrarian @contrarywitch I had a superb time, was one off (not going for pilot's licence till we win the lottery).

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2009-09-30T21:10:00.001+01:00

11:55 @vickya63 Yes we flew from Stapleford, down to the QE2 bridge then followed the river and across Essex. Was fab! #
11:57 @CareersInfo @SmilyLibrarian @contrarywitch I had a superb time, was one off (not going for pilot's licence till we win the lottery). #

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From Twitter 09-28-2009

2009-09-29T03:02:00.001+01:00

19:11:58: Jillbrad: Fantastic, hour flying lesson. I'm pretty much still airborne as I'm so high on the experience!

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2009-09-28T21:10:00.001+01:00

19:11 Fantastic, hour flying lesson. I'm pretty much still airborne as I'm so high on the experience! #

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From Twitter 09-27-2009

2009-09-28T03:01:00.001+01:00

00:02:37: Jillbrad: Went to a craft fair at Temple Cressing today and bought some beautiful clothes. Very bad of me but I couldn't resist them.
17:48:22: Jillbrad: @CareersInfo It's in Essex near Chelmsford. Medieval barns which used to belong to the Knight Templers. Very pretty!

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2009-09-27T21:10:00.001+01:00

00:02 Went to a craft fair at Temple Cressing today and bought some beautiful clothes. Very bad of me but I couldn't resist them. #
17:48 @CareersInfo It's in Essex near Chelmsford. Medieval barns which used to belong to the Knight Templers. Very pretty! #

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2009-09-24T21:10:00.001+01:00

21:56 yes just the 2 of us. Was lovely day but tired today. Hugs Jill #

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From Twitter 09-23-2009

2009-09-24T03:02:00.001+01:00

00:13:35: Jillbrad: Great day at Leeds Castle today. Was better weather than most of the summer.
21:56:02: Jillbrad: yes just the 2 of us. Was lovely day but tired today. Hugs Jill

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2009-09-23T21:10:00.001+01:00

00:13 Great day at Leeds Castle today. Was better weather than most of the summer. #

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2009-09-17T21:10:00.001+01:00

23:53 Had lovely day today going out with Phil, my sis and her beloved. was great fun and I was very well and full of energy. #
23:54 The energy is steroid based even though I got very little sleep last night, Hope tonight is better cos I'm getting really tired now. #

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2009-09-16T21:10:00.001+01:00

23:43 @SmilyLibrarian Took longer than we hoped but all done now, got home, had dins and good chats now ready for bed. #
23:43 @JuliefaithRigby Took longer than we hoped but all done now, got home, had dins and good chats now ready for bed. #
23:43 @vickya63 @Philbradley Took longer than we hoped but all done now, got home, had dins and good chats now ready for bed. #

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2009-09-15T21:10:00.001+01:00

02:00 Scan okay, all stable and bloods okay too so chemo tomorrow. #

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2009-09-07T21:10:00.001+01:00

11:40 Off the the pictures this afternoon to see the Harry Potter #

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2009-09-06T21:10:00.001+01:00

11:23 @storagebod That's one of my fav breakfasts too! #

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2009-08-29T21:10:00.001+01:00

18:19 Went to a stream train thingy today. Was a bit disappointing all in all but Phil got a couple of pictures. #

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2009-08-26T21:10:00.001+01:00

23:35 Treatment went okay today. On my usual steroid jag so probably won't sleep tonight. #
11:17 Slept really well last night which is a first after chemo. Feeling great as a result and very happy. Happy happy day! #

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2009-08-22T21:10:00.001+01:00

16:46 Saw Phil's Brother and his wife today, had a fun couple of hours with them. Hoping weather is okay tomorrow to visit Bletchley Park. #

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2009-08-20T21:10:00.001+01:00

11:16 @llansamlet Had a lovely time with them. How are the two of you doing? #
11:32 Going to visit Leeds Castle today. Hope weather stays okay, it's overcast but warm at the moment. #

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2009-08-19T21:10:00.001+01:00

10:40 Going out to lunch with some friends today. GastroPub which apparently has great food so should be fun. #

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2009-08-18T21:10:00.001+01:00

13:15 AS Phil Twittered earlier I didn't have chemo today. White blood cells just a tad low. #
13:16 Disappointed to miss the chemo but at least we can take advantage of the good weather and the fact that Phil is off work during August. #

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Scan and chemo

2009-08-04T16:40:00.002+01:00

Hi Everyone,

The twitter thing is still playing up so don't worry if there is a delay between posts.

My first scan on the new treatment is okayish, some small growth but no new lesions and the growth isn't big enough to be a worry yet, we are going to do another 3 sessions and then see what's happening.

Had chemo today and that's all okay too.

We had a great holiday in Port Meirion and the new car is a dream.

Looking forward to a friends wedding in a couple of weeks and that's all the news for now.

Hugs to you all.
Jill

2009-07-23T11:28:00.002+01:00

Hi Everyone,

This Blog hasn't been updated recently cos the link to Twitter has broken and therefore my Twitter post haven't been updating the Blog.

Everything is fine at our end, I've had my 3rd treatment on the new trial and I'm still getting used to managing the new side effects.

Bought a beautiful new car and going on holiday shortly so all is well in Bradleyworld.

Hugs to everyone.
Jill

2009-06-17T21:10:00.001+01:00

12:41 First cycle of new chemo Tuesday. Feeling fine today despite no sleep due to steroids. #

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2009-06-11T21:14:00.001+01:00

12:12 Off to do a bit of shopping. Weather too nice for cinema but not nice enough for picnic. #

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2009-06-07T21:10:00.001+01:00

20:18 Back from a great weekend with friends. Went to Zachary's naming ceremony and gave the Sweeps lots of silly little toys. Was fun. #

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2009-06-04T21:13:00.001+01:00

19:42 I was Just going to write about the happy suprise that the polling station was packed but I see that Phil got there first. #

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2009-06-03T21:13:00.001+01:00

14:01 @llansamlet I'm fine and Phil is slowly getting better. Planted up a couple of pots myself today. Looking forward to weekend away. Hugs Jill #

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2009-06-02T21:13:00.001+01:00

13:55 Back from dentist, two filling for me and an extraction for poor Phil. We are sad little beasts at the moment! #

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2009-05-28T21:11:00.001+01:00

21:49 @Valskelton it's Cheltenham that's posh, Chelmsford is in Essex, posher than Southend or Basildon but that's not saying much. #
21:51 @sammaddin We did go to Oil and Vinegar, got a couple of vinegars and lemon oil. #
21:52 @vickya63 English habit in our house too. #
21:54 Man United lost. Happy bunnies in our house! Now if we can just beat Chelsea on Saturday and it will be a wonderful world. #

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2009-05-26T21:14:00.001+01:00

10:35 @marianjones Hi Marian, not sure if you will be interested but I saw this article. news.bbc.co.uk/1/hi/health/8057785.stm #
20:17 @frandowdsofa I can see it on Twitter. Was the test for that or Facebook? #

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2009-05-23T21:12:00.001+01:00

20:23 @MrMLibrarian no you aren't the only one; I've paid late fees many times. #

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2009-05-22T21:10:00.001+01:00

15:19 At Dad's tidying and cleaning up as he gets out of hospital later today. #
15:21 Finally decided which chemo trial to go for so I now have some dates fixed. Feel better now decision is made. #

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2009-05-21T21:13:00.001+01:00

22:04 @vickya63 we had cream cakes after the doctor appointment. Lovely! #

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2009-05-20T21:13:00.001+01:00

15:10 Dentist this morning, doctor this afternoon. Life is a gay social whirl! #
15:12 @vickya63 I've got a pretty firm grasp of the pros and cons of both. Just having a problem deciding which weighs heaviest. #
18:50 @JuliefaithRigby sorry I missed your earlier tweet. I am changing treatment and still in the process of deciding between 2 treatments. #
18:53 @JuliefaithRigby I don't really need to talk it through. I'd love to see you though, what evenings are best for you? #

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2009-05-19T21:10:00.001+01:00

18:37 Still mAking up mind about next treatment. Luckily I have time as there has to be a delay between treatments. #

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2009-05-17T21:10:00.001+01:00

15:39 Phil is returning a remains of sandwich I found a hair in. Being a coward and very English I'm hiding in the car. #

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2009-05-16T21:10:00.001+01:00

17:07 Just had a friend over for lunch; had a great time. Also had Phil's chips and then a delicious homemade cherry trifle for pudding. #

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2009-05-15T21:10:00.001+01:00

12:11 Sorry been quiet recently, lots to think about. #
12:12 Still trying to decide which of the 2 trials I'll sign up with; both have drawbacks and advantages. #
12:14 Questions for the clinic on Monday before I make a final decision. Also seeing the Marsden hairdresser, since I'll prob lose hair this time. #
19:58 @sammaddin I saw it in the flesh when she dropped in on us. Is lovely! #

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2009-05-11T21:10:00.001+01:00

10:14 Off to hospital this afternoon to discuss what my new treatment will be. #

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2009-05-09T21:10:00.001+01:00

12:59 @twisteddragon pic worked and it does look cold to me too. Have a lovely time. Hugs Jill #
16:02 @llansamlet Thanks Eric, I have some more to put up when the connection probs fixed. Poor Phil is going demented. Hugs Jill #

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2009-05-04T21:10:00.001+01:00

23:13 Put up some bluebell woods pictures on Flickr. tinyurl.com/5zmyof #

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2009-05-03T21:10:00.001+01:00

17:23 Just made fruit jelly and listening to the Everton game on the radio. #
18:01 Everton win so we have a very happy Phil and Jill. #
20:46 @WitchesGate it should be ready tomorrow. You live near Essex, UK? #

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2009-04-29T21:10:00.001+01:00

14:35 #cilip2 Phil Bradley says - Thanks to the CILIP Council and that they are critical. #
14:36 #cilip2 PB says - remember the people who aren't here as their organizations don't allow access. #
14:38 #cilip2 PB says - the tool is not important, it's about a state of mind. We can make mistakes and then move on. #
14:41 #cilip2 PB says - content is less important than the conversation. We have to go where the conversations are. #
14:44 #cilip2 PB says - I'm hoping CILIP will be a "good example" not a "horrible warning". CILIP should embrace change. #
14:47 #cilip2 PB says - I want CILIP to be a support to the members in embracing new tools and promoting then with their organizations. #
14:49 #cilip2 PB says - important to engage with members in a whole variety of ways. CILIP already using Blogs. #
14:52 #cilip2 PB says - CILIP communities, why do you have to log in. Hard to use. #

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2009-04-28T21:10:00.001+01:00

18:11 @twisteddragon yes got your direct message in email. You are getting the hang of it. Hugs Jill #

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2009-04-27T21:10:00.001+01:00

17:37 Scan results all okay. No change since last scan so all stable and can continue with current treatment. V good news! #

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2009-04-26T21:10:00.001+01:00

11:35 We are making the most mega trifle today. looking forward to eating it already! #
13:24 @vickya63 We just finished it and it does look lovely, Fruit and sponge in jelly with custard and cream, finished with crushed choc flakes. #
16:37 The woods are full of bluebells. twitpic.com/41hws #
17:05 Just about to break into the trifle. twitpic.com/41jpr #
17:14 @sammaddin we'll make you some when you're better. #

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2009-04-25T21:10:00.001+01:00

10:45 Feeling better after a couple of bad days. Scan results late Monday so keeping my fingers crossed till then. #

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2009-04-22T21:10:00.001+01:00

08:50 @JuliefaithRigby So sorry you haven't been well. We missed you at the Eastercon bit it went well for us apart from that. Hugs Jill #

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2009-04-21T21:10:00.001+01:00

19:06 Home from hosp early today; set a new record for finishing time; 2.30 plus record for drive home so we got in at about 3.30pm. Result!!! #

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2009-04-19T21:10:00.001+01:00

18:46 Everton won against Man U. Fantastic!!!! We are in the final. So happy!!! #

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2009-04-18T21:10:00.001+01:00

09:34 Just finishing breakfast in a motel. Thank goodness we have a signal here; I thought Phil was near the edge. #

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2009-04-10T21:10:00.001+01:00

15:53 At the con, sitting in the bar chilling at the moment. Phil's pictures hung and he's doing talk tonight too. #
18:42 @sammaddin You are rude girl. I like that in a person! Hugs Jill #

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2009-04-09T21:12:00.001+01:00

09:53 Off to have my hair washed and blow dryed. An indulgence but I can't shower until I've been disconnected from the chemo pump later today. #
09:54 Then the distict nurse will come to flush and disconnect me and then... we are off in the car to Bradford for the SF con. Hurray!!! #

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2009-04-07T21:10:00.001+01:00

17:12 Couldn't get a signal at the hospital but everything okay and we are home now. #

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Hanningfield nature reserve

2009-04-06T16:34:00.001+01:00

Hanningfield nature reserve
Originally uploaded by jillbraduk

We went for a walk the other day; it was beautiful so I couldn't resist taking this picture,

2009-04-03T21:10:00.001+01:00

00:49 @vickya63 I remember Pycho Cat very well and fondly (he never ever attacked me, everyone else including Phil but not ME) #
00:51 @cclibrarian Beautiful pattern you are making there, I'm sort of envious but I'll finish my socks before I start another pattern. #
10:41 Just gonna knit a bit of sock before friend arrives. I'm not getting obssesive honest. Just slow knitter. #
15:45 Phil showing somebody Twitter. I'm knitting. Not an addict - honest. #
17:31 I have a sock. Now I just have to see if I can repeat it to have a pair (or I could just cut off one foot?). twitpic.com/2rnpb #

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2009-04-02T21:10:00.001+01:00

15:50 Visiting friend with new kittens. They are sooooooooooo cute. I wants one. #

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2009-04-01T21:10:00.001+01:00

12:05 Yesterday I had my hair done and then went to my knitting class, My first sock is growing will post a pic shortly. #
13:17 Picture of sock under construction. twitpic.com/2oezp #
15:59 Out for walk, now sitting and watching a goose. #
17:40 Local nature reserve, beautiful place for a walk. twitpic.com/2ojn6 #
17:42 @sammaddin keeping my fingers crossed. Also bags I get to play with them. #

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2009-03-30T21:10:00.001+01:00

01:19 Fingers better today so I've frogged (undone) the sock I was making and started it over again, it's easier than trying to fix the problem. #

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2009-03-28T21:10:00.001Z

12:42 seems to be a good cycle so far, had friend over for dinner last night. Was great fun, Phil cooked chips and Mavis brought Port. #

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2009-03-25T21:10:00.001Z

11:19 Hospital fine yesterday so I'm all hooked up to drugs today, Feeling okay though. #

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2009-03-21T21:10:00.001Z

18:42 Cooking honey glazed veg, just been to look and they are still rock hard. Late dinner tonight I suspect. #

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Tweets for Today

2009-03-18T21:10:00.001Z

11:06 Sister coming to visit today. Got past the frantic tidying we used to do but am considering hoovering the carpet. #
13:28 I needed plasters for sore fingers. Bought Kids Jungle; got tiger on left hand and python on right. Can't wait till the district nurse sees #
19:16 @vickya63 It's a side effect of the chemo. You get cracking and layers of dead dry skin peeling. Knitting makes it worse but I still do it. #

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Tweets for Today

2009-03-17T21:10:00.001Z

23:50 Knitting again, just getting to the end of current shawl and listening to Enigma DVD. #

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Tweets for Today

2009-03-15T21:10:00.001Z

12:35 Just had the first Rossi ice creams of the season. Life is good. Also tummy is very full. #

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Tweets for Today

2009-03-14T21:10:00.001Z

15:15 Off to see Dad and pick up our cat. #

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Tweets for Today

2009-03-12T21:10:00.001Z

13:16 Waiting for district nurse to come and disconnect me. Soon I'll be freeeeeee! #

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Tweets for Today

2009-03-11T21:10:00.001Z

01:25 @badriya Have you tried Tea Tree, 3 drops in a bath with some oil to dilute. If you catch it in time you can stop a cold in it's tracks. #
16:19 @badriya It may have but I always findvthe pure essensial oil works best, lasts for ages and works wonders on any cuts or scrapes too. #
16:22 @badriya don't know how easy to get there; do you have Heath food type shops there? Here you can get there, pharmacies, even supermarkets. #

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Tweets for Today

2009-03-08T21:10:00.001Z

14:21 Great time at the party last night. Almost all the family together for the first time in years. 21 peeps #
14:23 Jill is happy and still bouncy even after Speke Hall. Beautiful house; shame about the NT heavy squad. #
17:15 Everton shop, followed by Speke Hall, then Lyme Park. Only fly in the ointment is that I seem to have lost my scarf. #

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Tweets for Today

2009-03-05T21:10:00.001Z

14:40 Running around trying to get ready to got off to Shan and Mikes. #

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Tweets for Today

2009-03-04T21:10:00.001Z

21:58 Made Teriaki fish for supper, it was lovely but I think Iate too much feel slightly queasy now. My own fault for being a pig! #
20:21 Cooking cod in a tomato italianish sauce tonight; hope it tastes as good as it smells. #

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Tweets for Today

2009-03-03T21:10:00.001Z

12:29 Just blocked the lacey scarf I made for my sister (hope she likes it), did I mention that I hate the blocking part of knitting? #

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Tweets for Today

2009-03-02T21:10:00.001Z

15:24 Just trying to do a bit of jewellrey, my hands do seem to be slowly recovering now I'm off the Oxalyplatin. #

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Tweets for Today

2009-03-01T21:10:00.001Z

11:59 Going to write a weblog at long last. Then knitting as a reward. #

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2009-03-01T12:00:00.002Z

Hi Everyone,

About time I wrote a new post.

The last scan was a bit scary showing that some of the liver and lung tumours had shrunk a bit but some of the lung ones had grown a little. First time I've had any growth in the 15 months I've been on the trial and because my tumour markers have been so high they were concerned.

However the Professor has reviewed my case and feels that the disease is still stable so I can stay on my current treatment for the moment.
Worst that will happen is a change of drugs if the current trial stops working.

Next weekend we are off up to Liverpool for my sister's 70th birthday party, will be a huge family get together and I'm really looking forward to it. We've spent the last couple of months hoping that my chemo weeks would stay the same and they had! so it's my good weekend. We have family gathering from all over the place including Aberdeen, Spain and USA.

Woo Hoo!!!

Tweets for Today

2009-02-28T21:10:00.001Z

11:15 Going to craft fair at ExCel today. Woo Hoo! #

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Tweets for Today

2009-02-27T21:10:00.001Z

14:21 Can't knit today cos hands are sore :-( still hopefully better tomorrow. #

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Tweets for Today

2009-02-21T21:10:00.001Z

10:46 Friend visiting today. We will have chips and a video! #

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Tweets for Today

2009-02-20T21:10:00.001Z

19:33 Been ti visit Dad and watched some episodes of Hustle with him. Supper soon. #

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Tweets for Today

2009-02-19T21:10:00.001Z

01:15 Made a big pot of celery soup for my lunches and a big spag bol sauce for dinner too (with Qourn of course). at least 2 dinners there. #
11:41 Today I will be cleaning kitchen from the cooking session I did yesterday. #
14:53 @sammaddin You should be so lucky. #

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Tweets for Today

2009-02-17T21:10:00.001Z

12:19 Looking at celery soup recipes. Life hasn't been the same since Heinz stopping making cream of celery soup! #

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Tweets for Today

2009-02-15T21:10:00.001Z

21:48 @marydeeo I wouldn't dare try to steal anything from @infobunny, I think she may be a scary bunny wif sharp teefs #

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Tweets for Today

2009-02-14T21:10:00.001Z

19:51 playing with my new eee. I am a very spoilt bunny rabbit. #
19:52 Also watching the Simpsons. #

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Tweets for Today

2009-02-13T00:15:00.001Z

12:25 Staring OU course on Darwin, I'm looking forward to it. #

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